Drugging Kids Instead of Changing America

I am a psychiatric social worker and children's and young adult librarian. I  have 5 younger brothers, 4 grown daughters, 4  sons-in-law, 9 grandkids, 10 and under, 11 neices and nephews, first cousins, 7 great nieces and nephews,  and 45 Younger first cousins, the mother of 4, the grandma of 4. I am also a manic depressive. It took ten years to find a medication that helped; I read about it on the Internet and shopped for a psychiatrist that would partner with me to experiment.   The other meds did far more harm than good.

I am not denying a role for medication.  I am not talking about ADHD drugs like ritalin. However, childhood bipolar disorder has only been discovered in the last 15 years, mostly in America. Many discovers have close ties to Big Pharm. Until 1995 conventional psychiatric wisdom was that bipolar disorder could only be diagnosed in the late teens.  There is no conclusive study that proves childhood bipolar disorder leads to adult bipolar disorder. Psychiatrists still debate whether it exists.

Diagnosing Children with Bipolar Disorder

I am concerned that gifted, creative children, who march to a different drummer in our regimented society, are being misdiagnosed with bipolar disorder and threatened with a lifetime of dangerous medications and social stigma. Having that dire diagnosis imposed on you at age 6 severely compromises your ability to lead a normal life, marry, have children, go to college, have a career. How would you have reacted at age 6 if you were told you had a broken brain that could not be fixed, only treated with lifelong drugs with dangerous and/or unknown side effects? Having been told that at 40, I know what a sentence of doom such a diagnosis too often is.

Twenty years ago, psychiatry believed that bipolar disorder strikes in the late teens, that it was impossible to diagnose children or adolescents. Now psychiatrists occasionally diagnose bipolar disorder in four year olds, after too brief examination. Is diagnosing kids as bipolar sometimes an unthinking way to squelch kids who are divergent thinkers, who think too fast, talk too fast, question authority, get bored too easily in our increasing test-oriented schools.

Are other countries undergoing the same childhood bipolar epidemic or is this an American phenomena? When and how was the supposed epidemic of childhood bipolar disorder suddenly discovered? How many of the early pioneers were funded by drug companies? Have any longitudinal studies been done, comparing the life trajectory of kids diagnosed and medicated and of kids whose parents refuse medication? Is there any evidence that kids diagnosed as bipolar grow up to be adults with bipolar disorder?

What Is Wrong with My Three Year Old?

I am distressed by how many parents of preschool boys worry that their sons are autistic when their sons' behavior would never have been considered autistic even ten years ago. The autistic spectrum seems to become ever wider, capturing many more children in its diagnostic net. I have known, am related to, men who would now be diagnosed along the autistic spectrum. Yes, they are eccentric; yes, they are not the most stimulating conversationalists; yes , they don't have a huge number of friends. But they can be good sons, brothers, husbands, and fathers. If you can relate to your computer, you can have a successful career. Is the alarming epidemic of autism, along with the similar epidemic of childhood bipolar disorder, created by greatly expanding the criteria for diagnosis? Are we losing tolerance for divergent thinkers to maintain a society hostile to children and families?

When my kids were young, 25-30 years ago, even in therapy-obsessed Manhattan, preschool kids weren't frequently diagnosed, weren't taking psychiatric medications, so I am skeptical about this epidemic of very young children with serious problems requiring psychiatric drugs. If our kids were having problems in nursery school, we might decide to wait another year and find a better school. What is going wrong with the way we are raising children? Why do we look in children's brains for the answers to be found in social reform? Are we being encouraged to worry needlessly about our own kids that we don't have any time or energy for political activism on behalf of all children?

Who is blowing the whistle? Who is questioning the wisdom of babies and toddlers being cared for by strangers? Who is wondering whether group care is appropriate for most children under three or four? Thirty-five years ago, children were five before they were expected to adapt to group standards of behavior. Who is crusading for a shorter work week and greatly increased parental leaves? Who is is dedicated to make caring for preschoolers a viable career path for college graduates, comparable to teaching in salary and benefits?

Who is demanding the economic changes required to enable parents to care for their babies and toddlers themselves? Who is comparing our rate of childhood mental illness with rates in the rest of the Western world? Who is outraged about preschoolers taking multiple psychiatric drugs that have never been tested on children? Who is fighting to outlaw drugs ads in magazines and on TV? Why are we teaching our kids that drugs are the solution to every problem? Thirty years ago we felt like bad parents if we let our kids have caffeine.

The aggressive drug treatment of mental illness in the last 30 years hasn't been a success story. When yesterday's wonder drug becomes generic, its ineffectiveness is suddenly discovered and its dangerous side effects are no longer covered up. Today's expensive wonder drug will save your life after being tested for a shockingly short time on shockingly few people who don't share your diagnoses. Witness the latest advertising blitz to treat bipolars with antipsychotics; all the tried and true mood stabilizers are becoming generic, so they obviously can't help.

Preschoolers are so unformed, so in process. This year's four year old can seem like a different creature than last year's three year old. These diagnoses of autism, bipolar disorder, ADHD imply lifelong, incurable brain disorders for which there are no medical tests, no verifiable proof of their existence. How do we know that today's experts on autism are any more correct than the world acclaimed psychiatrist who attributed autism to "icebox mothers" 40 years ago? Why do we expect little boys to adapt to schools better suited to girls? Why don't we train and recruit more male teachers in preschools, who might be better role models for little boys and help create more welcoming schools?

It is politically correct to be very tolerant and open-minded about emotional problems, but that enlightenment is only surface deep. I mourn for the three year old already cursed with a lifelong diagnosis. Loner, loser, geek, and nerd seem far kinder labels. In this fall's TV season, geeks are the new Prince Charmings. The confidentiality of medical records is a myth. Many adults not diagnosed along the autistic spectrum have successful careers in math, science, engineering, computer programming. Would that have happened if they had been diagnosed and stigmatized as preschoolers? What special services would you have prescribed for Bill Gates?

I am not questioning that some preschoolers will benefit from early intervention to cope with their idiosyncratic learning styles or developmental delays. I am not questioning that some children with severe problems require evaluation and treatment from infancy. But preschool services should not necessitate a lifelong diagnosis.

Why would you accept that your young child has a permanently broken brain? Why not take him out of day care, find a different nanny, change nursery schools, reduce your working hours, live more frugally, borrow money and take a leave of absence from work, ask your parents and relatives for help, search out books and activities about his particular obsessions, learn the recommended interventions yourself?

Does your child need more relaxed time with his overscheduled parents rather than tense sessions with experts comfortable with diagnosing him after a few testing sessions?Why not wait until the picture becomes clearer? Why it is so urgent to find the answer when he is 2 or 3? We are not dealing with meningitis or childhood leukemia. here Are we doing far more harm than good? When I hear a 7 year old rattle off all his psychiatric labels, it breaks my heart and makes me want to man the barricades. I would love to find some comrades.

Along the Austic Spectrum?

This post is not facetious; I am struggling to understand. I am beginning to wonder if I might fall somewhere along the autistic spectrum as it is now conceived. I have a few close friends, but am very involved with my big family. Most of my abundant email is from my family. I am only truly myself with people I love. I am much more comfortable interacting with people on blogs than in real life. I would always chose reading a good book or watching TV and movies with my husband over attending a party.

I only had lots of friends when I lived in Manhattan; then I always bumped into them walking on the street and did not have to take the initiative. I am perfectly happy spending days alone, reading, writing, internet researching, visiting the library, gardening until my husband comes home. I don't know my neighbors except for a casual hello when we get out of our respective cars. Libraries are my version of paradise. I so appreciate that no one asks you if you need help.

My teachers only noticed me when I wrote my first composition; until then I was the quiet girl you might not realize was there. I recall one day that my kindergarten teacher called the roll and I said here, but she didn't hear me and marked me absent. I was much too shy to correct her, and had great difficulty the next day accounting for my absence because I had no note from my mom. Often my mother spoke for me when I was asked a question; I was too hesitant and took a long time to respond. My dad, who was like me, called her on that.

In the Catholic schools of my youth, with 60 students in a class, smart students who never talked in class, only answered questions but never asked them, wrote fine compositions and did well in tests, were praised. No one ever worried about them. I recall on rainy days we had to eat lunch in our classroom. We were permitted to talk, but I had taken to heart the rule about talking in class, and never said a word. How very weird I was!

My dad had a similar personality. His true nature only fully emerged in the three and one half years of love letters he wrote to my mom during the war. Reading the letters has been a revelation; I realize I never truly knew my dad. My mom was a vivacious extrovert; she never would have fallen in love with the shy, quiet man except that he wrote the best love letters I have ever read. Until my husband Peter came to America to marry me in 2001, we wrote and instant messaged to each other infinitely more than we were able to spend time together. So ours was a letter-writing romance as much as my parents had been.


All my 62 years I always recognized I was shy and introverted. I understood and felt far more comfortable with characters in books than with the people in my class or at my job. The seduction of mania is that my shyness and self-consciousness suddenly disappears. During my first manic episode, my brother Joe said: "My God, MJ, what happened. You sound just like mom." My father unhelpfully said, "Talk, talk, talk. What ever happened to Mary Jo, who was such a nice quiet girl." In real life I am a Mary, who pondered things in her heart. In my writing and when I am manic, my Joan persona emerges.

An essential part of taming my illness has been embracing and cherishing who I am. Manic Mary Joan is not my ideal self, is not the real me. Being a librarian was good for me because I had to talk to strangers, which I could do because they needed my help. A librarian is a anonymous handmaiden; people don't know her name. On the street, people would realize look familiar, but not be able to place me even if I had helped them numerous times. As a social worker, I worked well with clients one-on-one, but was terrified of conducting groups. As a La Leche league, I loved counseling mothers on the phone, but dreaded monthly meetings.

And yet I am secure that I have made a difference and am very happy I never was afflicted with another diagnosis. I am eager to read a new book: Shyness: How Normal Behavior Became a Sickness by Christopher Lane.

Social Anxiety Disorder?

This post is not facetious; I am struggling to understand. I am beginning to wonder if I might fall somewhere along the autistic spectrum as it is now conceived or merely suffer from "social anxiety disorder." I have a few close friends, but am very involved with my big family. I tend to make friends with people who leave all the reaching out to me, and often I can't bring myself to do it. Most of my abundant email is from my family. I am only truly myself with people I love. I am much more comfortable interacting with people on blogs than in real life. I would always chose reading a good book or watching TV and movies with my husband over attending a party.

I only had lots of friends when I lived in Manhattan; then I always bumped into them walking on the street and did not have to take the initiative. I am perfectly happy spending days alone, reading, writing, internet researching, visiting the library, gardening until my husband comes home. I don't know my neighbors except for a casual hello when we get out of our respective cars. Libraries are my version of paradise. I so appreciate that no one asks you if you need help.

My teachers only noticed me when I wrote my first composition; until then I was the quiet girl you might not realize was there. I recall one day that my kindergarten teacher called the roll and I said here, but she didn't hear me and marked me absent. I was much too shy to correct her, and had great difficulty the next day accounting for my absence because I had no note from my mom. Often my mother spoke for me when I was asked a question; I was too hesitant and took a long time to respond. My dad, who was like me, called her on that.

In the Catholic schools of my youth, with 60 students in a class, smart students who never talked in class, only answered questions but never asked them, wrote fine compositions and did well in tests, were praised. No one ever worried about them. I recall on rainy days we had to eat lunch in our classroom. We were permitted to talk, but I had taken to heart the rule about talking in class, and never said a word. How very weird I was!

My dad had a similar personality. His true nature only fully emerged in the three and one half years of love letters he wrote to my mom during the war. Reading the letters has been a revelation; I realize I never truly knew my dad. My mom was a vivacious extrovert; she never would have fallen in love with the shy, quiet man except that he wrote the best love letters I have ever read. Until my husband Peter came to America to marry me in 2001, we wrote and instant messaged to each other infinitely more than we were able to spend time together. So ours was a letter-writing romance as much as my parents had been. Neither of us would have been able to say what we were able to write.